This question comes from watching the TV right now, and they’re talking about Bruce Willis. I feel bad for him, I really do…
Bruce Willis apparently has what they call Frontotemporal Dementia. That’s a tounge twister mouthful for most average people, I can only assume Mr. Willis probably can’t even remember the name of his own condition…
Why isn’t there a ‘patient-friendly’ easy to remember name for disorders that literally affect a person’s brain and memory?
Like shit, I bet most people wouldn’t know what polytetrafluoroethylene is, but they gave everyone a simple name to know it by, teflon.
So, why don’t they have simpler terms for brain disorders so the suffering patient might be able to talk to their own doctor privately…?
Official medical terminology tends to be based off of Latin. How many people do you know that speak Latin?
Benadryl is the consumer friendly name for diphenhydramine hydrochloride. And yes I just pulled those letters out of my ass, I learned long ago that brand name Benadryl is expensive, but far cheaper alternatives exist.
I guess that is sort of the opposite of my thought though, my point is that important things should be easier to remember, especially those with brain/memory issues. Just because I can remember and spell long and complicated words, doesn’t mean everyone else can…
You don’t need to speak Latin to notice common roots and get a gist for what a term means.
If you’re actually in a position where it’s useful to distinguish one type of dementia from another, having a meaning that’s linked to what the symptoms are may help you remember both name and symptoms.
If you’re not a medical professional, remembering either name or symptoms for specific types of dementia is unlikely to be useful.
You’re missing the whole point.
The disabled patient should be able to memorize the name of their own condition, if at all possible at least. Disabled people don’t 100% of the time have other people available to help.
I would counter that the medical term is descriptive. Tell anyone with medical/medicine-related education someone has frontotemporal dementia and they know what is going on with the patient and what bodypart is affected. We can simplify with just “dementia” or a simpler term but you loose the specific meaning. Just like cancer is a two syllable simple word but a proper diagnosis includes way more information and has a more difficult term related. Equally, while the layman may prefer teflon and benadryl, the chemical/scientific name tells a trained person exactly what they are dealing with without having to look anything up, and does not suffer from different names across languages/borders. You cannot force simpler names as they will not be used in the medical/scientific community, so only if a disease is common enough to enter most peoples vocabulary will they come up with simpler terms or remember the term easily.
Yes, the medical term is clearly more descriptive. For medical professionals.
That doesn’t make it any easier for the patients suffering brain/memory problems to remember or explain their own condition.
We’ve made acronyms for everything else under the sun …LMFAO…
But who does the patient need to communicate it to other than health professionals? Other people should be satisfied with a phrase like “dementia that causes me to behave different and/or have difficulty speaking” otherwise they are just going to have to look up the disease anyway.
FTD is a rare disease (meaning less than 65/100000 people get it in their lifetime) and there are thousands of rare diseases. Who do you propose should come up with simple names for all of these, teach these to all medical professionals and make sure all info online gets both the descriptive and simple name attached?? There are enough issues with terminology in the medical world as is, trust me.
Yeah I get you, ROTFLMFAO!
Oh, I meant LOL…
The internet has no shortage of creative yet simple three letter acronyms, what makes brain issues any different? If anything, people suffering brain issues should be the first to get simplified terminology.
Like, what if Mr. Willis was just an average everyday person, same issues, but wanting a second opinion from another doctor? Not saying the second opinion would or would not be any different, but how would a patient with brain/memory issues even explain him/herself privately?
Not everyone with brain issues even has anyone to help them properly.
I am very familiar with medical terms and even I ask the doctor to write down the specifics of my diagnosis when I want to seek a second opinion.